Summary
In global observance of Rare Disease Day 2023, the Goodwin Life Sciences Regulatory & Compliance group hosted an event to spotlight the critical work being done to address the 7,000+ rare diseases that impact more than 300 million people globally. The Goodwin team brought together global leaders in the rare disease community, including Justin Klee and Josh Cohen, Co-CEOs & Co-Founders of Amylyx; Bob Coughlin, Managing Director, JLL and Cystic Fibrosis Patient Advocate; and Tom DiLenge, Senior Partner, Global Public Policy, Regulatory & Governmental Strategy, Flagship Pioneering. The program featured three fireside chats to discuss what inspires these leaders, what challenges the rare disease community continues to face, what work lies ahead in the global effort to address rare diseases, and what we can do to help.
Access a playback of the program to learn more.
In global observance of Rare Disease Day, Goodwin invites you to join us for a special awareness event on March 1, 2023 in our Boston office or virtually for those attending remotely to spotlight the critical work being done to address over 7,000 rare diseases that impact more than 300 million people globally.
Goodwin’s Life Sciences Regulatory & Compliance team is bringing together global leaders in the rare disease community for a series of three fireside chats to discuss what inspires them, what challenges continue to face the rare disease community and rare disease patients, the work ahead in the global effort against rare disease, and what we can do to help. Our registration links and full agenda are below, and a networking reception will follow the in-person event in Boston.
A Conversation with Rare Disease Leaders (March 1, 2023) Agenda:
12:00 PM – 12:30 PM EDT | Welcome & Networking Lunch
12:30 PM – 1:00 PM EDT | Fireside Chat – The CEO View
- Justin Klee and Josh Cohen, Co-CEOs & Co-Founders Amylyx (via Zoom)
- Julie Tibbets, Moderator
1:00 PM – 1:30 PM EDT | Fireside Chat – The Patient View
- Bob Coughlin, Managing Director, JLL and Cystic Fibrosis Patient Advocate
- Julie Tibbets, Moderator
- Matt Wetzel, Moderator
1:30 PM – 2:00 PM EDT | Fireside Chat – The Policy View
- Tom DiLenge, Senior Partner, Global Public Policy, Regulatory & Governmental Strategy, Flagship Pioneering (formerly of BIO)
- Matt Wetzel, Moderator
2:00 PM – 2:30 PM EDT | Networking Reception
Click here to register for the in-person event in our Boston offices.
Click here to register for the virtual event.
The post Goodwin Invites You to a Conversation with Rare Disease Community Leaders appeared first on Life Sciences Perspectives.
Speakers
- /en/people/t/tibbets-julie
Julie Tibbets
PartnerChair, Life Sciences Regulatory & Compliance Practice - /en/people/w/wetzel-matt
Matt Wetzel
PartnerLife Sciences Regulatory & Compliance